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Organization Contact Information | |
| Name: | The Association for Supporting MDR-TB Patients |
| Street 1: | Sos. Panduri nr. 29 bl.P2A, ap.11 |
| Street 2: | |
| City: | Bucharest |
| Province: | Sector 5 |
| Post Code: | |
| Country: | Romania |
| Phone: | 004021 3134363 |
| Organization Email: | catalina_constantin2000@yahoo.com |
| Web Site: | http://www.asptmr.ro |
| Other Online Presence: | |
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General Information | |
| Board Constituency: | Communities |
| Is your organization legally registered in your country: | Yes |
| If yes, please enter your registration number: | |
| Organization Type - Primary: | Patient Organization |
| Organization Type - Secondary: | None |
| Organization Description: | |
| 1.Mission:APTMR through cooperation promotes and sustains the right to health care, social protection for all patients with tuberculosis and high quality education for tuberculosis eradication 2. The organisation is founded by MDR-TB patients in order to respond to MDR-TB patient's health, psychological and social needs. 3.We are planning to ensure access to best quality social, heath services adapted to the specific needs for all members/patients with tuberculosis and multi drug resistant tuberculosis, to promote wide awareness and understanding of the impact of tuberculosis and multi drug resistant tuberculosis on the people who suffer this disease and their families, to ensure that needs of patients with tuberculosis are integrated into policies and programmes, to consolidate the association as the unique patients’ organization that defends the multi- drug resistant tuberculosis patients’ rights at the national level |
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| Do you know about the UNHLM declaration: | |
Specializations / Areas of Work | |
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Advocacy Delivery of health services and care |
Other Organization Information | |
| Total number of staff in your organization: | 1 - 5 |
| Number of full-time staff who are directly involved with TB: | 1 - 5 |
| Number of part-time staff who are directly involved with TB: | 1 - 5 |
| Number of volunteers who are directly involved with TB: | 11 - 25 |
| How did you hear about the Stop TB Partnership: | Attendance at a TB related event |
| If you were informed or referred by another partner of the Stop TB Partnership please tell us who: | |
| Why do you wish join the Stop TB Partnership: | Involvement in Stop TB Working Groups |
| Are you a member of a Stop TB national partnership: | No |
| Are you in contact with your national TB programme: | Yes |
| Please tell us how your organization is contributing to your country's national TB control plan: | |
| -Since February 2012 our organization is member of Romanian Country Coordination Mechanism (CCM) - We offer services to MDR-TB patients such as: psychotherapy and counseling regarding mental health conditions for MDR-TB patients and their families, legal advisor for MDR-TB patients and their families regarding human and patients’ rights, health education of MDR-TB patients and their families, counseling regarding vocational guidance, personal financial resources management, problem solving techniques - since february 2013 we are sub-subrecipient for FG project for MDR-TB patients and we have in process a project for MDR-TB patients, they receive psychological support, peer support, social support in order to maintain treatment adherence. |
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Geographical Reach | |
| Which country is your headquarters located in: | Romania |
| Which countries do you do operate in: (This includes countries you are conducting activities in) |
Romania |
Contribution | |
| Please tell us how your organization will contribute to the Global Plan to Stop TB by briefly describing its involvement in any of the areas of work listed below: | |
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TB Care Delivery: Our organization plan to contribue to the Global Plan to Stop TB by: increasing awarness to general population and stakeholders about TB and MDR-TB,creating a network of advocates nationaly and internationaly, persuading MDR-TB and TB patients to speak about their experience and their problems, creating a volunteers network in order to provide support to TB patients to be adherent to treatment and to support their families thru education, information, increasing the number or NGO members. Drug-Resistant TB: Our organization plan to contribue to the Global Plan to Stop TB by:mapping MDR-TB patients' needs and, with partners' help,to creat a low draft in order to protect patients right to treatment, social protection and social inclusion, creating a data base with all MDR-TB patients in order to help NTP by covering social and psychological aspects during and after TB treatment, providing legal advise to TB patients, providing psycological support and therapy services to MDR-TB patients, providing trainings to medical staff in order to manage patients with addictions, psychiatric problems, to motivate patients to be adherent to treatment using motivational interview. TB-HIV: Our organization plan to contribue to the Global Plan to Stop TB by: making partnership with HIV/SIDA patients' NGO's in order to help HIV patients to cope with TB, councelling TB patients to do HIV tests, educating them, helping them to be social included. |
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Declaration | |
| Declaration of interests: No conflicts of interest were delacred. | |
| Application date: | November 21, 2013 |
| Last updated: | June 19, 2014 |