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Organization Contact Information | |
| Name: | TTTB - Take That TB |
| Street 1: | Heisterkamp 16 |
| Street 2: | |
| City: | Hamburg |
| Province: | |
| Post Code: | 22339 |
| Country: | Germany |
| Phone: | 004915155830257 |
| Organization Email: | cordula@takethattb.com |
| Web Site: | http://www.takethattb.com |
| Other Online Presence: | |
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General Information | |
| Board Constituency: | Communities |
| Is your organization legally registered in your country: | No |
| If yes, please enter your registration number: | |
| Organization Type - Primary: | Patient Organization |
| Organization Type - Secondary: | None |
| Organization Description: | |
| Our aim is the exchange between patients and the discussion about our experiences with TB. We want to be a platform for patients on treatment and for former patients who want to exchange about their experiences with TB. We want to be a chatroom for patients in isolation. While others are busy working hard in the fight to develop better drugs and treatment regimes, we want to be a place for patients to get the support and understanding that only other patients can give… Collectively we can offer great support to each other, and help raise the awareness of TB in our communities, and help remove the stigma this disease has unfortunately associated with it. We welcome doctors and hospital staff to join us, to help you understand TB from another point of view… to help you have another resource to offer your patients to help them through their experience. We want to talk about our experiences during treatment and afterwards and make the stay in hospital a little bit better. We have to talk about TB face to face and give TB a FACE |
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| Do you know about the UNHLM declaration: | |
Specializations / Areas of Work | |
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Advocacy |
Other Organization Information | |
| Total number of staff in your organization: | 1 - 5 |
| Number of full-time staff who are directly involved with TB: | 0 |
| Number of part-time staff who are directly involved with TB: | 1 - 5 |
| Number of volunteers who are directly involved with TB: | 100 + |
| How did you hear about the Stop TB Partnership: | World TB Day |
| If you were informed or referred by another partner of the Stop TB Partnership please tell us who: | |
| Why do you wish join the Stop TB Partnership: | Information on developments within the TB world |
| Are you a member of a Stop TB national partnership: | No |
| Are you in contact with your national TB programme: | No |
| Please tell us how your organization is contributing to your country's national TB control plan: | |
| Our website is made to break that cycle of isolation to give us access to others even in our most contagious phase. It exists to give us a place to talk to people going through the same things, to talk about our difficulties, our successes, and to share with people who understand our fears. |
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Geographical Reach | |
| Which country is your headquarters located in: | Germany |
| Which countries do you do operate in: (This includes countries you are conducting activities in) |
Australia Germany Nepal Republic of Moldova Spain Thailand |
Contribution | |
| Please tell us how your organization will contribute to the Global Plan to Stop TB by briefly describing its involvement in any of the areas of work listed below: | |
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TB Care Delivery: This website is made to break that cycle of isolation to give us access to others even in our most contagious phase. It exists to give us a place to talk to people going through the same things, to talk about our difficulties, our successes, and to share with people who understand our fears. Research: Our aim is the exchange between patients and the discussion about our experiences with TB. We want to be a platform for patients on treatment and for former patients who want to exchange about their experiences with TB. We want to be a chatroom for patients in isolation. While others are busy working hard in the fight to develop better drugs and treatment regimes, we want to be a place for patients to get the support and understanding that only other patients can give… Collectively we can offer great support to each other, and help raise the awareness of TB in our communities, and help remove the stigma this disease has unfortunately associated with it. We welcome doctors and hospital staff to join us, to help you understand TB from another point of view… to help you have another resource to offer your patients to help them through their experience. We want to talk about our experiences during treatment and afterwards and make the stay in hospital a little bit better. We have to talk about TB face to face and give TB a FACE. |
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Declaration | |
| Declaration of interests: TB can be a very isolating disease. Both because of the need for isolation of patients until their active disease is brought under control, and from the social stigma associated with it. This website is made to break that cycle of isolation to give us access to others even in our most contagious phase. It exists to give us a place to talk to people going through the same things, to talk about our difficulties, our successes, and to share with people who understand our fears. | |
| Application date: | July 18, 2012 |
| Last updated: | July 27, 2013 |