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Organization Contact Information

Name: Yayasan Spirit Paramacitta
Street 1: Jl. Batas Dukuh Sari Ujung No. 30
Street 2:
City: Denpasar
Province: Bali
Post Code: 80223
Country: Indonesia
Phone: +62 858-5727-5392
Organization Email: spirit.paramacitta@gmail.com
Web Site: http://spiritpaamacitta.org
Other Online Presence:

Focal Point Contact Information

Salutation: Ms
First Name: Putu Ayu
Last Name: Utami Dewi
Title: Coordinator
Email: putuayuutamidewai@gmail.com
Phone: +62 858-5727-5392

Alternate Focal Point Contact Information

Salutation: Ms
First Name: Ni Wayan Putri Larassita
Last Name: Parwangsa
Title: Coordinator Peer Support
Email: larassitaputri9@gmail.com
Phone: 08983146494

General Information

Board Constituency: None
Is your organization legally registered in your country: Yes
If yes, please enter your registration number: M-81-HT.03.01-TH. 1985 NUMBER. 25
Organization Type - Primary: Non-Governmental Organization
Organization Type - Secondary: Community-Based Organization (CBO)
Organization Description:
Yayasan Spirit Paramacitta, abbreviated as YSP, is an NGO engaged in the field of providing support and assistance to people with HIV due to the high level of stigma and discrimination against people with HIV in Indonesia. We work towards the empowerment of PLHIV. Evidence indicates that the majority of PLHIV are also infected with tuberculosis (TB) which worsens the health status of PLHIV and became one of the leading causes of death for PLHIV.
Based on this, YSP intends to detect and prevent the transmission of the TB as early as possible, namely from the time when children are growing up. Thus it can be identified and treated earlier. The method used to intervene in the transmission of the TB virus is by outreach to children at the posyandu/integrated health post by carrying out a TB test, contact intervention by conducting a TB test on people who have direct contact with children with confirmed TB and providing treatment assistance to children who have confirmed TB so that drug withdrawal does not occur resulting in drug resistance.

 
Do you know about the UNHLM declaration: Yes

Specializations / Areas of Work

Advocacy
Delivery of health services and care
Technical Assistance
Working on Community, Rights and Gender (CRG)
Working on Key Populations related to TB

Other Organization Information

Total number of staff in your organization: 51 - 99
Number of full-time staff who are directly involved with TB: 51 - 99
Number of part-time staff who are directly involved with TB: 51 - 99
Number of volunteers who are directly involved with TB: 0
 
How did you hear about the Stop TB Partnership: Involvement in TB control provision
If you were informed or referred by another partner of the Stop TB Partnership please tell us who:
Why do you wish join the Stop TB Partnership: Involvement in Stop TB Working Groups
 
Are you a member of a Stop TB national partnership: Indonesia
Are you in contact with your national TB programme: Yes
Please tell us how your organization is contributing to your country's national TB control plan:
TB is closely related to HIV in form of Opportunistic Infection (OI). When someone got positive HIV test result, TB screening is mandatory. Our organization is focused on supporting person with HIV especially in peer counseling and medication. Our staff act as a friend, family, or someone close to the patient to create a good relationship. When person with HIV got TB, our organization also support patient with their medication and as a peer support. So that our organization also contribute indirectly in increase the quality of medication and case finding of TB.
 

Geographical Reach

Which country is your headquarters located in: Indonesia
Which countries do you do operate in:
(This includes countries you are conducting activities in)
Indonesia

Contribution

Please tell us how your organization will contribute to the Global Plan to Stop TB by briefly describing its involvement in any of the areas of work listed below:

TB-HIV:
I. Project Background

Globally, tuberculosis (TB) is the leading cause of infectious disease mortality; however, clinicians in the United States are increasingly unfamiliar with tuberculosis and the recommended tests and treatment for latent tuberculosis infection. Compared with adults, children who develop tuberculosis more often develop severe disease, and children < 2 years are particularly susceptible to developing tuberculosis disease after initial infection. At least half a million children become ill with tuberculosis each year. Up to 74 000 children die of tuberculosis every year [1]. In 2017, approximately 10 million people, including 1 million children, developed TB disease (ie, active TB with clinical signs or symptoms of TB, or both) worldwide, and 1.3 million died, including at least 233,000 children.1 TB is the ninth leading cause of death worldwide and the leading cause of death from a single in- fectious agent, ranking above HIV/AIDS.
Tuberculosis (TB) infection is a major health problem in the world. One-third of the world’s population is infected with tuberculosis bacteria. Indonesia is the fifth country with the highest TB cases in the world. The prevalence of all TB cases in Indonesia is 244 per 100,000 population and the incidence is 228 per 100,000 population. In the first quarter of 2016, the proportion of pediatric TB patients was 9.9%. Tuberculosis infection problems in children are more complex than in adult patients. Sources of TB transmission to children are adult TB patients who have close contact with toddlers, one of whom is a family member.
The proportion of pediatric tuberculosis cases among all tuberculosis cases in Indonesia in 2010 was 9.4%, then to 8.5% in 2011, 8.2% in 2012, 7.9% in 2013, 7.16% in in 2014 and 9% in 2015. The proportion varies between provinces, from 1.2% to 17.3%. This variation in proportion may indicate different endemicity between provinces.

Based on data from the health office in the city of Denpasar, the number of TB cases in children aged 0-14 years is 47 in 2021 and 59 in 2020.
Yayasan Spirit Paramacitta, abbreviated as YSP, is an NGO engaged in the field of providing support and assistance to people with HIV due to the high level of stigma and discrimination against people with HIV in Indonesia. We work towards the empowerment of PLHIV. Evidence indicates that the majority of PLHIV are also infected with tuberculosis (TB) which worsens the health status of PLHIV and became one of the leading causes of death for PLHIV.
Based on this, YSP intends to detect and prevent the transmission of the TB as early as possible, namely from the time when children are growing up. Thus it can be identified and treated earlier. The method used to intervene in the transmission of the TB virus is by outreach to children at the posyandu/integrated health post by carrying out a TB test, contact intervention by conducting a TB test on people who have direct contact with children with confirmed TB and providing treatment assistance to children who have confirmed TB so that drug withdrawal does not occur resulting in drug resistance.
Project Goals
1. Intervensions for children who are at risk of contracting TB from a TB- Infected environments.
2. 95 % from 150 of data on children infected with TB receive TB/OAT treatment.
3. Adherence to TB therapy in children infected with TB after receiving assistance.
4. There is a home visit to ensure good air circulation which can be support the success of therapy.


II. Methods

1) Triple Interventions
a. Primary Healthcare Facilities
b. School Health Facilities
c. Integrated Healthcare Center

2)Triple Methods
a. Outreach
• The aim of the outreach is to collaborate with the puskesmas/community health centres and posyandu/integrated health posts to screen children at the posyandu/integrated health post by recording every child at the posyandu/integrated health post and carrying out a TB test during routine posyandu/integrated health post implementation.
• The test will be carried out by health workers at the posyandu/integrated health post with the target being children aged 0-5 years.
• Home visits will also be conducted to reach children who are not present at the posyandu/integrated health post or who are not recorded by the posyandu/integrated health post which can increase TB case findings.
b. Contact Investigation
• Contact investigation will be carried out to increase TB case finding by early and systematic detection of people who are in contact with the source of TB infection. This activity emphasizes the role of the community in tracing, mapping, building trust to making referrals to health facilities and recording/reporting. Contact investigations are conducted at the same time as home visits.
• After conducting contact investigations, patients suspected of having TB symptoms will be referred to adequate health facilities to carry out TB treatment.
c. Peer Support
• After finding a child suspected of having TB or diagnosed with TB, the patient will be referred to the health facility and followed up with medical consultations;
• After obtaining a treatment decision according to the patient's needs, therapy/treatment is carried out for the patient accompanied by a companion who has been trained by YSP to educate patients and their adherence to therapy;
• The companion will provide psychosocial support during the treatment period as well as home visits to carry out contact investigations and prevent transmission of the TB virus to the wider environment.

No. Activities Number of Staff Describe Timeline
1 Recruitment of Patient Support Coordinator 1 To coordinate support efforts and activities for children with TB January 2024
2 Patient Support Staff 16 To support children with TB from detection to being cured Januari-Februari 2024
3 Patient Support Coordinator Training 2 To train the coordinator on all aspects of TB as well as counselling and lay support for children with TB and their families and program management February 2024
4 Patient Support Staff Training 16 To train the coordinator on all aspects of TB as well as counselling and lay support for children with TB and their families and reporting commitments March 2024
5 Creation of MOU - Creation formalised commitment and MOU with health care provider in our working area January 2024
6 Launching Program & Workshop - Official launch and socialisation of program with implicated stakeholders February 2024
7 Patient Support 16 Patient support provision April-Desember 2024
8 Patient Support Reporting 16 Development and submission of all activity reports as required As needed


Declaration

Declaration of interests:
No potential conflict of interest was reported by the applicant and the organization.

Application date: July 19, 2023
Last updated: July 20, 2023